Tag: Albino

Noisy (creative nonfiction)

~ M. Ashley ~ 2 Comments

“Feel the delight of walking in the noisy street,
And being the noise.”
-Rumi, “A Community of the Spirit”

I bet the world would take Gen Z a lot more seriously if they knew the difference between “everyday” and “every day..” There is, at least I think there is, a correct way to make noise in this math we call writing.

Words mean things.

I once got in an almost fight with a therapist because she thought “heigth” was a word. That would have been an unholy kind of noise. A rumbling fist fight behind the closed doors of confidentiality. I may have come out bloody, she looked like she could have been a scrapper, but dammit, I would have been right. I am right. There is no h at the end of the word.

A lady in my group therapy had an albino husband. There was some drama with him at the behavioral health clinic. The therapist leading the group said she heard about him coming in and “acting a fool.” Part of his foolishness being that he whizzed in the corner of one of the therapists’ offices and had to be carted out of there by the po po. He was making all kinds of noise—shouts, grunts, tinkles.

I was embarrassed for my people. When the secretaries for the crazy house see me, do they now think, there’s another noisy albino ready to piss in the corner. Somebody get the gloves on. Somebody get that powder that sucks up hazardous liquids. Somebody get a mop.

I speak quietly, still embarrassed for my people. Lack of pigment doesn’t mean lack of decency man, be a human for fuck’s sake. Be a little quieter, in a dignified way. You are not the kind of spiritual noise Rumi was talking about.

That same lady, married to the peeing albino, in my therapy group, looked ratty all the time. Not throwing stones. I can rat it up in fine style myself. Just a matter of fact she looked ratty all the time. And once she said she didn’t take care of herself because her albino husband couldn’t see her anyway and I didn’t disabuse her of her excuse to look ratty, but unless there was something extra wrong with his eyes that isn’t wrong with mine, yes… yes he can see her in all her ratty inglory..

I’m sure that’s not what made him make the loathsome noise and piss in the corner, but it’s just one more stressor, or an indication of a relationship already stressed because the woman cares more about what he can’t see than what she sees in herself.

I wanted to shout in the street that she should be un-ratty for herself, and damn the pissing albino with his not that bad eyes. Be your own woman. Be you for you. Be beautiful for your own liking. But then I realize, shouting at her in the street would be me making the noise at myself mostly because I too, as I said, can rat it up a lot of the time and don’t like looking at myself in the mirror and I don’t look and the internal noise is something like well, if I can’t see the rat tunes that well, I can’t blame myself for being ratty, which is the same argument this lady had but at her other, which is infinitely better than me having this discussion and blaming my quiet rattiness on myself.

-M. Ashley

What Does “Yellow Sun” Mean to the Blind? (creative nonfiction)

~ M. Ashley ~ Leave a comment

My god assures me that there are worlds of albinos out there in the universe. Whole worlds of us where the light is perpetually twilight and we can all see everything and our skin radiates and no one ever gets skin cancer and no one calls us “Milky” and no one hunts us for our magical body parts.

I hope he knows that in this world, the twilight has to be just the right kind of twilight. It can’t be too much toward dark or light, because then it’s either too bright or the lights have just come on and they are too bright. It’s that sweet spot where it’s too light for the automatic streetlights but too dark to need sunscreen anymore. That’s the spot that world would have to be in for us all to radiate, to be the norm, to keep our body parts intact.

Now, here’s a question: If there were mutated pigmented people on this world full of albinos, how would we tell them how to find stuff? “Look for that thing I think is fuzzy and silver next to the tall thing I think is fuzzy and green?” What does an unsighted person say to a sighted person to direct them through their twilight world?

They would have to be in special schools I think and have their own language of clear letters that make sense to only them.

I once was in a class where I saw a teacher telling a blind kid to remember that the sun was yellow. I was ten at the time, but even then that seemed so odd. I suppose you need to know the sun is yellow to understand what that means when it comes up in literature or on the TV or in conversation, to understand the connection, I mean, but the statement itself is meaningless, is it not? What does yellow mean to a person who is totally blind?

Maybe yellow means sun and heat and summer, not summer and sun and heat means yellow.

“Which blindness comes from looking beyond the mark,” is a Mormon scripture I repeat to myself a lot, directed at myself, or shaking my head at others. I think that’s a more godly way of saying you can’t see the forest for the trees, though it would be more like you can’t see the trees for the forest. If there were no yellow sun, or no white moon reflecting the yellow sun, no one, sighted or not, could see the forest or the trees.

I’m going around in circles. The sun is a circle. The sun is yellow. The circle would be meaningful to a blind person, whereas yellow would be a wild, esoteric theory—something you have to wait for your own world to see, or for the second coming—or for Jesus to walk by and rub mud in your eyes.

-M. Ashley

NaPoWriMo: I Am an Albino

~ M. Ashley ~ Leave a comment

Unrequited lover of the light
Longing for west and east facing
Curtain-less windows wide open

But built to be shy of the light
Take it all in unrestricted
Get sick from it

My skin cancers
I faint
My iris-less eyes
Twitch in pain

God comforted me once
He said, “Perhaps the light
Is maladapted—not you
Nor your love of it.”

-M. Ashley

On Being Albino in Southern California

~ M. Ashley ~ Leave a comment

Photo on 2012-06-07 at 18.06Last week, out to lunch with a friend, a pack of neo-valley-girls blustered in and sat down in our section. Not too long after, one of them pointed at me, they whispered to each other, then all laughed loudly. It happens. It is an extreme unpleasantness that goes with the albino turf.

As galling as it was, however, I think the thing that galls me most is realizing that these idiots, obviously students at CSU Berdoo, are probably the same type who shout diversity and inclusion from the rafters all day, every day, as they flit from class to class. I see tolerance only goes so far. Only certain types are worthy.

One interesting thing is that in the thirteen years I lived in Nashville, I never encountered that. Not even once. Since I have been back in California, however, it has happened several times, and has always come from adults. In Nashville, if someone were curious, she or he would just walk on over, strike up a conversation, and ask. They’d most often want to touch my hair and ask whether I preferred “an albino” or “a person with albinism.” I found this pleasant and endearing.

While I’m not prepared to make any sweeping conclusions about the virtues of southerners as opposed to the vices of southern Californians—individuals are individuals after all, and hypocrites can be found under any slimy rock you care to turn over, regardless of geography—in my heart, I feel those conclusions beginning to boil.